Welcome to HSCT STOPS MS. It does. This site aims to clarify how HSCT stops the disease progression of Multiple Sclerosis.
If you are in a hurry to learn about HSCT for MS please go directly to this page.
We explain some of the commonly misunderstood aspects of this treatment. HSCT is a scientifically proven therapy that halts disease progression in Multiple Sclerosis. It has also been successful for many other autoimmune diseases.
The criteria for treatment differ according to the different facilities. The initial introduction to HSCT and attendant information can seem overwhelming at first. It can all seem a little intimidating.
We convey simply and comprehensively the main factors when considering HSCT. You will find a wealth of information on this site to help you understand HSCT and how it works.
There is also a complete list of the facilities worldwide that perform HSCT. We cover the two different forms of HSCT. We also answer commonly asked questions about the procedure.
Other protocols have helped to slow down M.S. progression. I have personally found many of these make the quality of life with M.S., much better. These include:
- THE COIMBRA HIGH DOSE VITAMIN D PROTOCOL
- THE KETO DIET OR KETOGENIC DIET
- GROUNDING BENEFITS – MY EXPERIENCE
- OTHER PROTOCOLS THAT HAVE HELPED REDUCE SYMPTOMS OF MS
WHY I SET UP HSCT STOPS MS
The main reason I set up this site was because when I first heard about HSCT, I found myself struggling to comprehend all of the different technicalities and variables that have to be taken on board and clearly understood when considering treatment.
Once I had decided that pursuing treatment was a priority for myself, I excitedly informed my family and friends that I no longer needed to live with the terror of M.S., as a new treatment was available to stop my disease progression.
Attempting to explain HSCT to friends and loved ones became my next stumbling block. Most of them did not even understand M.S. One friend summed it up when I told him that things were getting worse: “I don’t know what M.S. is, but I know it’s bad!”
This site is here to show to your friends and family and help them to understand just how important getting this treatment is to your future and if they love you, to theirs.
Unless you live with M.S., it is impossible to understand what a cruel and unforgiving monster it is. HSCT is the sword that can slay the dragon that is M.S. and give back hope and life!
HSCT STOPS MS ADVISES JOINING HSCT GROUPS ON FACEBOOK
Once you have grasped the general concept and you might wish to ask more questions. HSCT STOPS MS has tried to answer the most frequently asked questions, but you may have more of a scientific or medical nature. Please go to Facebook and join the forum”HSCT Awareness.”
Many knowledgeable people (many of whom have had HSCT) offer advice and information. There are many other HSCT groups on Facebook. Some by categories are by countries, others by protocols or facilities.
Talking to people who have had treatment at different facilities is helpful. It is invaluable in helping you to decide whether you are suitable and if so, where is best for your treatment. For example, there is a fabulous group in Australia headed up by Kristy Cruise. She was one of the first people in Australia to be treated in Russia. Moving Mountains To Defeat M.S. has helped numerous people in the Southern Hemisphere.
Equally, there is a forum that deals with Dr. Burt and treatment in Chicago, where insurance will cover the treatment bill if you meet the criteria. Dr. Burt’s Support Group can offer advice and advise on how to submit insurance applications etc.
The U.K. group advises how to be treated free of charge on the NHS if you meet the criteria and are a U.K. citizen. All of the groups and extremely helpful and kind. We will all do our best to help you navigate the HSCT path. With many veterans as members, you will get good honest advice.
HSCT STOPS MS, BUT IT IS STILL NOT AVAILABLE IN MAINSTREAM HEALTHCARE IN MOST COUNTRIES
HSCT is still not available in mainstream national health care in most countries. It is now available in the U.K. on the NHS if you meet the criteria. The criteria are in line with the EBMT guidelines, based on the Dr. Burt protocol. The primary criteria is to show active inflammation and enhanced lesions, as evidenced by an MRI.
While trials are still going on in several countries (please access this information under ‘choosing a facility’ in the menu), it will be many years before this is a recognized and available procedure in mainstream medicine.
It is true that in the last five years, HSCT as a treatment for autoimmune diseases, has become widely recognized around the World. It is an effective treatment for those with Relapse Remitting MS. There has been much success with Secondary progressive M.S. as well. Mostly for those diagnosed with M.S. within the last ten years.
For the best benefit from HSCT, transplantation must be undertaken earlier in the disease life cycle. When performed later in the disease evolution, there is a higher degree of irreversible disability. HSCT halts the disease but cannot always repair the damage that has already happened.
Thus, it is a fight against time for many stricken with M.S., who have the added burden of coming up with the money to ensure that they catch this boat before it leaves the harbor!
Use this link for more information about M.S. and how it can affect people.
I wish you all the very best with your journey to pursue treatment and banish the curse of M.S. from your life once and for all and hope that you find the information here helpful.
Now that you have an overview of what HSCT for M.S. involves, you may have some more questions. Please use the following links to find out more:
- WHAT IS HSCT?
- UNDERSTANDING HOW HSCT FOR MS WORKS?
- IMPORTANT CONSIDERATIONS WHEN LOOKING AT HSCT
- CHOOSING AN HSCT FACILITY
- HSCT FACILITIES WORLDWIDE
- MYELOABLATIVE VERSUS NON-MYELOABLATIVE HSCT
- WHAT IS MS?
- TYPES OF MS
- IF YOU ARE CONSIDERING HSCT, YOU SHOULD FIND OUT ABOUT THE COIMBRA HIGH DOSE VITAMIN D PROTOCOL FIRST!
If you have a minute We would really appreciate you leaving a comment as to where you are from and why you came to the site. We are working on a new site and would love to know how to direct you to information that can help you. Thanks in advance if you are kind enough to do this.
Best regards, I was diagnosed with MS in august 2015 RRMS and on 2 September 2015 i made Stem Cell Transplant and CCSVI and know i am feeling fine.
I want to know the best clinic where i can make HSCT because i want to be sure my ms is stoped.
Thank you !
Just wanted to let you know that I gave read up on this website and am thoroughly impressed on the level of information and its relevance. As a former MS’er I do support aiding other MS’ers and to get the word out. I am planning to ‘pay forward’ by increasing awareness and promoting this website.
Thanks Bandy! Much appreciated! Have you had HSCT? I am interested in your comment that you are a “former MS’er? 🙂
I will be happy to discuss via email (bandysingh@comcast,net) as I do not want to discount this site
Thanks for spreading the word! Best of luck in Moscow! = )
https://plus.google.com/110096352091197181669/posts/HVYiBnwCtNu
http://sykkel-jan.blogspot.nl/2015/05/hsct.html
Ciao.
Jan
Good to hear such great news!
I had the treatment in Russia in December and it was nothing short of life changing. I am starting full time work in October and I can know go to the gym and dead lift, squat and bench press what “normal” people my age can’t. My next objective is to run (I can now shuffle on a treadmill). This is a great page and I will put it up on my Facebook page to give people access to the great information contained here.
Best regards
Danny
Congratulations and thanks Danny. Yes please this site was created to help inform people and remove the confusion around HSCT, so sharing would be great! Good luck! 🙂
HI! I’m reading everything about HSCT and researching the facilities for a friend with MS. He’s had this horrible disease for almost half his life (47 yrs).
I’m encouraged by everyone who comments abt their story. Your comment is the latest post..I’m not seeing any posts in 2017; that worries me.
Pls …if you have any more information you’d like to share abt your HSCT treatment, how your symptoms were changed and how you’re doing now. Any words of wisdom, I will join the FB HSCT Awareness pg but I’m trying to connect with real people…trying to find real people that have done this treatment and show him that he MUST DO THIS treatment. Thank you, Genevieve Prichard
Hi Genevieve,
The reason that there are less comments on here for 2017 is that I get so many that I have been replying personally to stop clogging the site. But perhaps this is depriving people of information so in future I will post my replies. There are many factors that decide how well HSCT will work for a particular candidate. I would need a lot more information about your friend before advising you. How long has he been diagnosed? You mention his age, so has he taken any Disease modifying drugs and if so how many and what types? What is his EDSS and what type of MS has he been diagnosed with? Please reply and I will attempt to help you. I myself decided against HSCT for myself after much deliberation and after observing many others receiving treatment over a period of 4 years. I deducted that as a Secondary Progressive and with my particular symptoms and age that it was a toss up that could result in making me worse. Instead I have decided to pursue high dose vitamin D Therapy as discovered by Brazilian Neurologist Dr. Coimbra. I have had positive results and I intend to expand this site and explain the protocol and how it works. I have been on it now for almost 1 year. I am a huge advocate of HSCT if you are the right candidate, but it is encouraging to realise there are other options out there that do work and are considerably less harsh on the body and the wallet. Please answer my questions and I do my best to point you in the right direction.
Hi, could you please send me a link to join a FB group. I have an autoimmune disease which I would really want to treat by Coimbra protocol, and don’t have any idea where to start from in the UK.
Hi Mariana,
if you just put into the search Coimbra protocol they will come up. Coimbra protocol North America is a good one, but if you want info on how to access treatment the nearest place I found was Portugal. There is a report on how I went about doing this under the Coimbra protocol menu.
Hi I m from india. Wanted to know if thr is any diff in terms of protocol across countries. Being from india considering to have HSCT in Indu. Was diagnosed with PPMS in 2016.
Pl suggest.
Rajiv
Hi Rajiv,
Yes the protocols do differ, but Myelo is not offered anywhere for PPMS. Most of the protocols that offer Myelo are signed up to the EBMT which means that they will only treat people that are RRMS with active lesions and inflammation as evidenced by an MRI. They essentially follow the Dr. Burt guidelines for treating people with HSCT. India, Mexico, Russia who offer treatment to SPMS and sometimes PPMS all perform Non-Myelo. I believe the Philipines has a protocol that is more in line with Myelo but I am not sure exactly what their criteria for treatment is. It may be worth contacting them to find out. Their information is on the HSCT Facilites page of this site.
I may have missed this but what are the Other Options that work too, as stated in the title?
Hi Robert,
I am in the process of updating the site and adding more information. Many people are not suitable for HSCT as you probably know. It is less effective in many cases for people with progressive forms. I have been observing people being treated now for 5 years and there are many cases that do not benefit from HSCT and some unfortunate people who have found the treatment detrimental. There are many things that help to slow or ever stop progression. The Coimbra high dose Vitamin D Protocol specifically, has been miraculous for many. Since the objective of HSCT is to stop progression it is definitely worth looking at this option. I myself have found this beneficial. It was devised by Dr. Coimbra, a Brazilian Neurologist/Research Scientist who has assertained that people suffering from autoimmune diseases have a genetic predisposition that prevents them from making or metabolizing Vitamin D effectively(which is a hormone not a vitamin). This is what causes the body to malfunction.
If you need more info let me know and can forward some links, but I am working on getting this information up soon.
Hi:) I have been on the coimbra protocol and it totally stopped my ms progression and symptoms for about 6 years 😊
I felt really well until It didnt work anymore.
I suddenly got this extreme fatigue, and nausea and got several hypercalsemias. It wouldnt end and I had to stop the protocol as both the vitamin D and magnesium made me ill 😢
Now I have decided to do the HSCT and hoping this will heal my body 🙏 I find your page very interesting and very well explained information about the hsct 😊
Hi Monica, sorry to hear the vitamin D stopped working. But I do wish you the very best with your HSCT treatment, and sincerely hope that you get the healing you deserve. Good luck 🙂
It’s a shame there are no supplements that include all the necessary ingredients for the protocol as it gets to be quite expensive purchasing all these individual bottles.
Hi Ed I agree. I am in the process of revising my thoughts on the number of vitamins we actually need. I am exploring some new protocols. I will be in touch.