HSCT FACILITIES WORLDWIDE

 FULL LIST OF HSCT FACILITIES WORLDWIDE THAT OFFER HSCT TREATMENT FOR MS AND OTHER AI DISEASES (Update January 2018)

COUNTRY
AND
ACCEPTANCE
CRITERIA
FACILITIESADDRESSESGENERAL
E MAILS &
TYPE OF
HSCT
WEB
PAGE
CONTACT
PERSON
TELEPHONE &
Other AI
Types
Treated.
E MAILCOST
AND DURATION
OF STAY
USA FLAG WITH TEXT



For the Study:
RRMS or V. early SPMS.
Failure of Two Disease Modifying Drugs & active lesions
Northwestern University
Division of Immunotherapy and Autoimmune Diseases
Feinberg School of Medicine
446 E. Ontario 10th Flr Ste 1000
Chicago, Illinois 60611
Office 312-695-4961
contact email: info@stemcell-immunotherapy.com
CLINCAL TRIALS WEB SITE

Non-Myelo

WEB SITE HSCT INFOKathleen (Kate) Quigley,RN, Kim Yaung, RN

Carol Burns, RN
Office 312-695-4961
Office 312-695-4961
Office 312-695-4961

MOST
(Please
check)
K-Quigley @northwestern.edu KYaung@nmff.org

carol.burns@northwestern.edu
$150,000 -
$200,00

6-7 weeks
Satellite Dr. Burt Studies around the World BRITISH FLAGSheffield Teaching Hospitals NHS Foundation Trust
Research Department, Clinical Research Office Sheffield, D Floor, Royal Hallamshire Hospital, Glossop Road, Sheffield S10 2JF
getinvolved@sth.nhs.uk

Non-Myelo
CLINCAL TRIALS WEB SITE0114 226 5935getinvolved@sth.nhs.ukNo charge if you meet criteria and are UK Citizen
BRAZIL FLAG São Paulo - State of São Paulo, BrazilCLINICAL TRIALS WEB SITE
SWEDEN FLAG WITH TEXT
Uppsala University
University | Box 256, 751 05 Uppsala |
SWEDEN
Clinical Trials InfoTel. 018-471 00 00No charge if you are a national and fit criteria
USA FLAG WITH TEXT



Max age 70
2 failed DMDs
Active lesions or
inflammation
Fred Hutchinson Cancer Research Center,

DR. GEORGE GEORGES
825 Eastlake Avenue E. Seattle, WA 98109-1023CONTACT LINK

Myelo
WEB SITE LINKDr. George Georges
Bernie McLaughlin, RN
800-804-8824

MOST
(Please
check)
http://www.seattlecca.org/doctor/george-e-georges.cfm

bmclaugh
@fhcrc.org
$150,000 -
$200,00

6 - 7 weeks
USA FLAG WITH TEXT

Active inflammation. 2 failed first line DMDs
Colorado Blood Cancer Institute1721 East 19th Avenue, Suite 300
Denver, CO 80218
720-754-4843

Non Myelo
MAIN WEB SITEPeggy Myers RN OCN
New Patient Intake Coordinator

Phone: 720-754-4843 or
720-754-4835

Email: Peggy.Myers@HealthONEcares.com
Phone: 720-754-4843 or
720-754-4835

MOST
(Please
check)
Email: Peggy.Myers@
HealthONE
cares.com

$150,000 -
$200,00

6-7 weeks
ISRAEL FLAG WITH TEXT
Neurologist recommendation.
Letter from Neuro, or second opinion in Israel
Shaare Zedek Medical Center

Prof. Yaakov Rowe
Shmu'el Bait St
12, Jerusalem, 9103102,
ISRAEL
gashka.resnick
@gmail.com, yana@r-tdc.com, ira@r-tdc.com

BEAM-ATG .
Web SiteProf. Igor Resnick,
Yana Karaly.
Phone:
+972 52
4413703 ,
+972 54
7986302

MS Only
gashka.
resnick@
gmail.com,
yana@r-tdc.
com, ira@r
$120,000

Approx:
5 Weeks
RUSSIAN FLAG WITH TEXT



Max Age Limit 65
No specific criteria. Treat SPMS and PPMS as well as RRMS
The A.A. Maximov Department of Hematology and Cellular Therapy.

Dr. DENIS FEDORENKO
The A.A. Maximov Department of Hematology and Cellular Therapy, National Pirogov Medical Surgical Center, 70 Nijnia Pervomayskaya, Moscow 105 203, RUSSIAmsclerosis@yandex.ru.

Non Myelo
MAIN WEB SITEDr Denis Fedorenko
Anastasia Pachenko
Phone/Fax +7 495 603-72-24
Phone +7 915 290-00-67

MS, Lupus, Rheumatoid Arthritis,
Scleroderma,
CIDP
panchenkoak
@mail.ru
$45,000

5 - 6 weeks
GERMAN FLAG WITH TEXT

Universitätsklink Heidelberg

PROF. ANTHONY D. HO
Abteilung Innere Medizin V
Im Neuenheimer Feld 410
69120 Heidelberg
GERMANY
sonja.kierschke@med.uni-heidelberg.de

Myelo
MAIN WEB SITESonja Kierschke

International Office
00 49 6221 56
8000

MS
International.
Office@med.
uni-heidelberg
.de
$68,000

6 - 7 weeks
SOUTH AFRICA FLAG WITH TEXT

UCT Private Academic Hospital

PROF. NICHOLAS NOVITSKY
Blood Centre
UCT Private Academic Hospital
Anzio Rd.
Observatory
7925
Cape Town
nicolas.novitzky
@uct.ac.za

Myelo
MAIN WEB SITENicolas Novitzky+27 021 442 – 1800

MS
nicolas.novitzky
@uct.ac.za
SWEDEN FLAG WITH TEXTStockholm Care AB

Karolinska Hospital
P.O.Box 6423
SE-113 82
Stockholm
SWEDEN
info@stockholmcare.se+46 8 672 24 00

MS
6-7 weeks
CANADA FLAG



For Study, Failure of Two Disease Modifying Drugs & active lesions
Ottawa General Hospital, Ottawa, Canada

DR. MARK FREEDMAN
Ottawa Hospital Research Institute
725 Parkdale Ave
Ottawa
ON K1Y 4E9
CANADA
info@ohri.ca

Non Myelo
MAIN WEB SITE613-761-4395

MS
Free to nationals only. Non nationals not treated

6 - 7 weeks
ITALY FLAG WITH TEXT

18 - 55 years.
Active inflammation. 2 failed first line DMDs
Careggi University Hospital, University of Florence

DR RICARDO SACCARDI
Largo Brambilla, 3-50134
Florence,
ITALY
bmtms-firenze@dmsc.unifi.it

Myelo
HSCT for AI BY DR. SACCARDIAdministrative Coordinator: Lara Cox Trial nurse: Claudia Boglione613-761-4395

Multiple Sclerosis, Optical Neuromyelitis, Systemic Sclerosis,
Crohn's Disease
bmtms-firenze@dmsc
.unifi.it ; boglionec
l@gmail.com
$60-$65,000

Approx 3 months total.
POLISH FLAG WITH TEXTKlinika Hematologii i Transplantacji Szpiku w Slaskim Uniwersytecie MedycznymOddział Hematologii i Transplantacji Szpiku
ul. Henryka Dąbrowskiego 25
40-032 Katowice
Non-MyeloMAIN WEB SITE koordynator d/s przeszczepów+48 32 2090 615
+48 32 2591 346

MS
klinhem
@sum.edu.pl
Nationals only.
(Free)

5 - 6 weeks
mexico flag

Compassionate patient to patient basis. No specific criteria. Treat SPMS and PPMS as well as RRMS
CLINICA RUIZ

Non-myelo
Boulevard Diaz Ordaz No.808, Col. Anzures Puebla, Pue 72530. MEXICOhsct@clinicaruiz.comCLINICARUIZDanielle Smith
Manuel Ruiz
Tel. (222) 243.81.00 Ext. 278hsct@clinicaruiz.com$54,500.00

4 -6 weeks
Singapore flag

Max Age: none stated. Max EDSS: 6.5 but patient by patient exceptions.

2 failed DMDs
SINGAPORE GENERAL HOSPITAL

Non- Myelo
SINGAPORE GENERAL HOSPITAL Outram Road Singapore
169608.
ims@sgh.com.sgMAIN WEB SITEDr Colin Phipps DiongTel. +65 6222 3322

Other AI diseases treated on patient to patient basis
ims@sgh.com.sgStem cell harvesting 45,000 SGD – 50,000 SGD

Transplantation 80,000-100,000 SGD

Harvest: 10 - 14 days
Transplant: 3-4 weeks full isolation
Singapore flag

Max age 55 max EDSS 6.5
At least one line of DMDs failed or intolerance at appropriate treatment doses for at least 6 months defined as at least 2 flares in the preceding 12m or 3 flares in 24 months

For early SP-MS, patients must have evidence of inflammatory disease e.g. last flare less than 1 years ago or presence of GAD enhancement on MRI, or total duration of disease from diagnosis less than 10 years
RAFFLES CANCER CENTER

Non-Myelo
585 North Bridge Road, Raffles Hospital,
Raffles Cancer Centre, #10-00,
Singapore 188770
bmt@rafflesmedical.com
bloodnmarrow@gmail.com
MAIN WEB SITEDr. YVONNE LOH SU MINGTei. +: 65-6311
2300
bmt@rafflesmedical.com
bloodnmarrow@gmail.com
S$ 110,000 to 120,000

Aprox 6 - 8 weeks
PHILIPPINES FLAG

MAX EDSS 8
AGE 18 - 55
Positive MS DX
1 failed DMD


MAKATI MEDICAL
CENTER
2 Amorsolo Street, Legazpi Village, Makati, 1229 Kalakhang Maynila, Philippines SarahAngela
.Anonuevo@
makatimed.
net.ph

Non-Myelo
Main Site InfoSarah Angela R. Añonuevo-Yuvienco, RN

Cellular Therapeutics Center
Stem Cell Nurse
Tel:+(63)2.8888.999 local 3613

+(63)917.784.2355
Sarah Angela R. Añonuevo-Yuvienco, RN

Cellular Therapeutics Center
Stem Cell Nurse
$50-55,000 USD.
Accommodation is an additional charge.
Hotel Partners
45-60 days.

 

55 comments

    1. Hi Barbara, I am no expert on the trials. I just post the information but you should join the face book group “Hematopioetic Stem Cell Transplant – MS & Autoimmune Diseases”. Post the question there and I am sure someone will be more acquainted with the options available to you! Good luck x

    1. I think Ottawa is the only place in Canada that has HSCT for MS and AI Diseases and the parameters for the trial are quite narrow. See my comment above and do that.

  1. I am also from Canada. I am a mom with three kids still at home going to school, and post secondary. I worked all my life but I am now on disability. My MS does not look dramatic but I do have a brainstem lesion, and I have lesions on 6 of my 7 cervical neck spine areas, also thoracic lesions – last MRI said thinning at T5. If T5 goes I will be a paraplegic. My brain is not so badly affected so other than moving slowly, sometimes staggering, tripping, I look fairly normal but am I ever suffering on the inside. I constantly feel like I have a cement block squashing me down. Sometimes I feel like if I fall asleep I may not wake up. I am in constant pain from my lesions on my back. The brainstem lesion I believe is the cause of my hearing loss. I get Uhthoff’s so badly I can barely see – everything becomes a milky white fog and I lose the ability to walk. I am trying to get into Ottawa, but it does not look good. So if that fails I will try to find place that offers HSCT for pay. If I don’t go I know I am facing wheelchair soon, adaptive equipment and as I get worse, and I will, I will need palliative care which will cost us a fortune so… The less impact on my family, my children will be HSCT, though because I am on disability that will be a huge financial blow. At any rate, this does not cost anything but I am trying to get this petition going because I don’t think when people can get this treatment for cancer, why it isn’t a readily available choice for MS. Please sign this petition to put pressure on (Canada – Health Canada, and for the USA – FDA) to get this to be an approved treatment so we don’t have to be jumping through hoops and bankrupting ourselves, especially when it saves millions for insurance drug costs. https://www.change.org/p/provide-hsct-for-multiple-sclerosis-as-a-recognized-treatment

    1. Hi Laurie, I have no information on whether this will be available at the new hospital in Vancouver. The only treatments that I know of in Canada are trials. Please see the HSCT facilities list to get contact info to find out. Good luck.

    1. Sarah I believe it is classified as Non-Myeloablative. They have a unique protocol which falls somewhere between the two, but is still
      officially classified as Non-Myeloablative.

      1. Hello,

        Has anyone been to the makati medical centre for HSCT? I am extremely keen to, but not sure how best to contact them and start the process. Ideally Id like to go for the Myeloablative protocol. The contact details dont see up-to-date?

        Regards, ms_interest

  2. I was wondering if anyone has had this
    procedure done in Mexico? If so,
    would you mind telling me where,
    who the doctor was and what the
    total cost was? I was diagnosed
    with MS in 2003 and am trying to
    find a safe and cost friendly place to
    have the procedure done.

      1. Hi Salome, I am not the arbiter for treatment. This was set up to help people get information. You would need to approach the different facilities and also find out if there are any trials taking place. I wish you the best of luck.

  3. I have been suffering from MS for almost 30 years. I am Swedish and woud like to have a second chance with MS.
    I would like to be treated privately and pay for it.
    Please DO reply. F.Estakhri

    1. Hi Deepak yes it is very reliable – well over 500 have been treated there….it maybe closer to 1000 now. There is a group on facebook for people that have been and want to be treated there: Russia HSCT for MS & Autoimmune Diseases
      You should join in to get info.

  4. Hello all,

    did i do something wrong?
    english is hard ha
    i just wonder if the non mylo is also affecting fertility in makati med hospital…
    if so i’ll have to freeze semen i guess….
    please let me know.
    thx again.

    erwin belgium

    1. Hi Erwin, yes you are advised to freeze your sperm…especially if it is Myelo. Dr Fedorenko in Russia prides himself on preserving peoples fertility but he does Non Myleo……

    1. Hi Raza, no unfortunately the Indian facility closed a couple of years ago and as far as I aware has not re-opened.

    1. Hi Dianna,

      Please go to the Facebook page HSCT Awareness where you will find many people who have been treated and who are waiting for treatment dates. There is a wealth of knowledge, information and advice available. Good luck.

  5. Dear All,

    I am wish to go for the Myeloablative protocol. Does anyone know what hospitals have this (I know Heidelberg in Germany does), any others?

    1. Hi Sam,
      Italy does Myelo, and the Philippines does a version that is Myelo based, but has a unique protocol. I think Singapore also does Myelo. If you look on the Facilities list it should state which type each facility performs. You will also find contact information so that you can e mail directly. I should add that most of these facilites require that you show active inflammation and have proof that you have failed one or two DMD’s. Good luck!

      1. Many thank you for your help and advice. I have had RRMS for around 10 years. The last year I had MRI that show very active lesions and my walking is harder. The problem is that I have refused conventional DMT’s. Im worried this will be a problem, but I need to go for HSCT before things get worse. There doesnt seem to be contact info for makati philippines?

        Regards, ms_interest

          1. Many thanks. I did contact them, and their response was prompt and helpful. Their info says they do offer Myeloablative protocol. Im just panicking and scared that I will be refused, because I have refused conventional DMT’s (as evidence and data suggests that these arent really effective against gradual but sustained deterioration). I have lesions, the MRI shows these, but have yet (luckily) avoided a major relapse. So scared I will be rejected, I desperately want to get it done. Previous DMT’s shouldn’t really ‘impact’ or influence HSCT criteria 🙁

    1. Hi Raul, we are still researching the facility in India. As soon as I am happy that it is reliable and reputable I will post it on the World wide facilities list.

  6. Hi Terri, you should apply to Mexico, Russia, Philippines. You can find the details on the facilities list. They can independently access your suitability for treatment. This is the best advice that I can offer. Each case is different. Your EDSS is a factor in this. I wish you the very best. Tina X

  7. I’m going to northwestern in January for an in person evaluation. If I’m not fully accepted I will go to Mexico and I’ve already booked a tentative appointment. Has anyone had the procedure done? Does anyone have further insight on if it truly stopped progression and if myelo is more effective. Thank you- georgia

    1. HI Geogia, there are thousands of people that have had the procedure. I suggest you check out the HSCT forums on facebook. There is one specifically for Northwestern I believe. But there is also HSCT Awareness and many others. You can ask questions of Veterans and pick their brains. It is an invaluable source for someone like yourself who is weighing up the options. I presume that you are RRMS and have taken at least 2 DMD’s. The question of whether Myelo is more effective is a difficult one. Since the beginnings of HSCT the procedure itself has become more and more sophisticated and myelo in my personal opinion is no longer necessary. Dr. Federenko in Russia treats each patient specifically within the parameters of their disease. As we all know, everyone has their own personal version of the disease and he has become adept at recognizing and utilizing this to maximize the effectiveness of his treatment which is non-myelo. However as far as publishing the results goes, the medical establishment has strict rules on how this information is fed into the mainstream, so sadly it may be many years before we see tangible evidence of the efforts of pioneers like Dr. Federenko. Good luck with your application at Northwestern.

  8. I was just looking at all the countries that are doing HSCT stem cell treatment for MS. I was wondering if the 1 in Mexico has a time limit and if your success chances go down if you gone from RRMS to SPMS in a span of over 15 years? What are the side effects, other than being out MONEY and time? This procedure still interests me TREMENDOUSLY!! But I don’t feel like I have the whole story. I welcome any info or personal experiences that did or didn’t work.

    1. Hi Susan, yes it is true that long term diagnosed patients are generally less likely to benefit from HSCT. There are many factors that come into play and as we all know no one person’s MS is the same as anothers. Many people have experienced success with a 15 year diagnosis. The best way forward would be to contact the facility that you are interested in and ask them to assess your history and advise on whether they feel you would be a good candidate? How old are you and what is your current EDSS?

  9. Can someone please tell me how long you have to wait before having HSCT done again. My friend had it done in 2016 in the Philippines but when he returned he got, he got meningoencephalitis and has gone backwards. He is thinking about doing the treatment again. Has anyone had HSCT done more than once?

    1. Hi Violet,

      I think I have seen you previously on the HSCT forums and I remember your friend. I cannot remember his name. I only know of 1 person that has had the procedure done twice, and I am unaware of her condition since. It is not common but also not unheard of. I would imagine that it is dependent on the type of HSCT performed, and I believe that in Philippines that is is a procedure that is close to myleo than non-myelo. My advice would be to decide on a facility and message them directly to explain the situation and get the advice from the horses mouth so to speak. However if his EDSS has deteriorated I would imagine that it would be difficult to get a facility to perform the procedure again. What is his EDSS?

  10. I have been accepted to have HCST in Artemis Hospital IN iNDIA cost US$30600 total for myself and my attendant for about 31 days in Hospital
    I have only heard good reports from here, have you heard of any bad reports?
    I also noticed it was not on the list why not?
    Cheers
    Graham Cooper

    1. Hi Graham.

      The reason India is not on my list is that a very dear friend of mine died there after being inadequately assessed for treatment. Equally another fatality occurred, both in the first 6 months of the Centre opening for HSCT treatment of AI diseases. There were other issues that became apparent which were disturbing. I myself and several other HSCT groups do not advocate treatment at this facility which is why I have not included it. I wish you the best with your treatment and sincerely hope that they have circumnavigated the problems they were experiencing when my friend Arpa sadly passed away.

    1. Hi Ron yes lots of people have been treated in Mexico. If you go to face book you will find a group that is set up for HSCT in Mexico at Clinica Ruiz. You can interact with people who have been treated there and who are intending to be treated there so check it out! 🙂

  11. I love that you made this page. This page is what led to me finding out about hsct and also to dr Burt where I’m going in July. I was researching how to stop and reverse ms and this page popped up.

    1. Thanks Georgia, so happy it helped you!That was the reason I set it up. I am about to add more information for others for whom HSCT is not an option. I really wish you the very best with your treatment with Dr. Burt. 🙂

        1. Hi Christa,

          India is not listed because myself and several other groups does not advocate this facility! A dear friend died here during treatment due to neglect and there have been several other issues and at least one other death. I have addressed this before.

  12. Hi

    I am from South Africa. I just noticed that South Africa also offers the treatment. However, my daughter was diagnosed with MS in 2012 when she was 13. She is now 18. She has been on Betaferon, Copaxone and Tysabri. The latter for 2 years. She has had a number of relapses and new active lesions since on Tysabri. Our neuro has now suggested Lemtrada, but according to him, it is not available in South Afica.

    My question is, is my understanding of HSCT in fact the use of Lemtrada? How successful is South Africa with this treatment? Do you have the cost by any chance? We have been told that it is around 1.2 million Rand (95 000.00$)

    Kind regards

    Antoinette

    Please advise.

    Thanking you

    1. Hi Antoinette,

      I tried several times to contact Prof Novitski but had no luck so I am not sure whether this facility is still up and running? I do not know the cost as I have failed to reach them to update the information. Lemtrada is a pretty standard treatment World wide so I do not understand why it is not available in South Africa. It is a chemo drug and I personally have a problem with continually taking it, as the side effects long term are still not known. The good thing about HSCT is that it is performed and completed. You do not contiunue to take the Chemo drugs once it is completed. Also they do not use Lemtrada for HSCT. Generally they use Rituximab or Atg. You might also want to check out the Coimbra High Dose Vitamin D Protocol since she is so young.

  13. I understand that treatment for PPMS is much less successful, but what is the general consensus regarding myelo vs non-myleo for PPMS. I know the more readily available clinics do non-myleo, but if the best treatment for PPMS is myelo, how would someone find a place to treat them with that protocol? Thanks so much!

    1. Hi Randy,

      I personally feel that the thinking behind myleo being “stronger” is a bit outdated. procedures have come a long way and are more tailored to each person. A lot more depends on your particular diagnosis. When you were diagnosed, what your EDSS is etc which will give an indication of axonal pathway damage and some idea of how you would respond to the treatment. Most places that are prepared to treat PPMS do no offer myelo. You may possibly try the Philipines. I believe their treatment is more aligned to myelo than non-myelo.

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