HSCT STOPS MS
Hello and welcome to HSCT Stops MS. It does. It really does and we are going to find out how! The intention of this site is to clarify in simple terms how HSCT stops the disease progression of ALL TYPES of Multiple Sclerosis. We explain some of the commonly misunderstood aspects of this treatment. It is the only scientifically proven therapy currently available that totally halts disease progression in MS as well as many other autoimmune diseases.
The criteria for treatment differs according to the various different facilities. For everyone, the initial introduction to HSCT and attendant information can seem overwhelming, at first. It can all seem a little intimidating. Our intention is to convey in a simple and comprehensive way the main factors that need to be addressed when considering HSCT. You will find a wealth of information on this site to help you to understand HSCT and how it works. There is also a complete list of the facilities world wide that perform HSCT. The two different forms of HSCT will be explained and frequently asked questions about the procedure will be addressed.
WHY I SET UP HSCT STOPS MS
The main reason I set up this site, was because when I first heard about HSCT I found myself struggling to comprehend all of the different technicalities and variables that have to be taken on board and clearly understood when considering treatment. Once I had decided that pursuing treatment was a priority for myself I excitedly informed my family and friends that I no longer needed to live with the terror of MS, as a new treatment was available to stop my disease progression.
Attempting to explain HSCT to friends and loved ones became my next stumbling block. Most of them did not even understand MS. One friend summed it up when I told him that things were getting worse: “I don’t really know what MS is; but I know it’s bad!” This site is here to show to your friends and family and help them to understand just how important getting this treatment is to your future and if they love you, to theirs. Unless you live with MS it is impossible to understand what a cruel and unforgiving monster it is. HSCT is the sword that can slay the dragon that is MS and give back hope and life!
JOIN HSCT GROUPS ON FACEBOOK
Once you have grasped the general concept and you might wish to ask more questions. These are often of a scientific or medical nature. Please go to Facebook and join the forum”HSCT Awareness”. This is moderated by many knowledgeable people (many of whom have been treated with HSCT) and my lovely self! ;-). There are many other HSCT groups on facebook. The groups are divided into different categories. Some by countries, others by protocols or facilities. Talking to people who have been treated at different facilities is invaluable in helping you to decide whether you wish to be treated and if so where. For example there is a fabulous group in Australia headed up by Kristy Cruise, one of the first people in Australia to be treated in Russia. Moving Mountains To Defeat M.S. has helped numerous people in the Southern Hemisphere.
Equally there is a forum that deals with Dr. Burt and treatment in Chicago where insurance will cover the treatment bill if you meet the criteria. Dr. Burt’s Support Group can offer advice and advise on how to submit insurance applications etc. The UK group advises how to be treated free of charge on the NHS if you meet the criteria and are a UK citizen. All of the groups and extremely helpful and kind. We will all do our best to help you navigate the HSCT path. With many veteran’s as members you will get good honest advice.
HSCT IS STILL NOT AVAILABLE IN MAINSTREAM HEALTHCARE IN MANY COUNTRIES
HSCT is still not available in mainstream national health care in most countries. It is now available in the UK on the NHS if you meet the criteria. This is in line with the EBMT guidelines, based on the Dr. Burt protocol. The primary criteria is to show active inflammation and enhanced lesions as evidenced by an MRI. While trials are being conducted in several countries (please access this information under ‘choosing a facility’ in the menu), it will be many years before this is a recognized and available procedure in mainstream medicine.
It has to be said that in the last 5 years it has become widely recognized around the World. It has been recognized as an effective treatment for those with Relapse Remitting MS. Also for Secondary progressive MS for those diagnosed within the last 10 years. In order to gain optimum benefit from HSCT it is imperative that transplantation is undertaken earlier in the disease life cycle. When performed later in the disease evolution, there is a greater degree of irreversible disability. HSCT halts the disease but cannot always repair damage already done. This means that it is a fight against time for many stricken with MS, who have the added burden of coming up with the money to ensure that they catch this boat before it leaves the harbour! More information about MS and how it affect people can be found here: http://www.hsctstopsms.com/what-is-ms-and-how-does-it-manifest/
I wish you all the very best with your journey to pursue treatment and banish the curse of MS from your life once and for all and hope that you find the information here helpful.