Hello and welcome to HSCT Stops MS. It does. It really does and we are going to find out how! The intention of this site is to clarify in simple terms how HSCT stops the disease progression of ALL TYPES of Multiple Sclerosis, and explain some of the commonly misunderstood aspects of this treatment which to date is the only scientifically proven therapy currently available that totally halts disease progression in MS as well as many other autoimmune diseases. The criteria for treatment differs according to the various different facilities. For everyone, the initial introduction to HSCT and the attendant information can seem overwhelming and a little intimidating at first. Our intention is to convey in a simple and comprehensive way the main factors that need to be addressed when considering HSCT and how they affect every individual. You will find a wealth of information on this site to help you to understand HSCT and how it works, along with a complete list of the facilities world wide that perform HSCT. The two different forms of HSCT will be explained and frequently asked questions about the procedure will be addressed.
WHY I SET UP HSCT STOPS MS
The main reason I set up this site, was because when I first heard about HSCT I found myself struggling to comprehend all of the different technicalities and variables that have to be taken on board and clearly understood when considering treatment. Once I had decided that pursuing treatment was a priority for myself I excitedly informed my family and friends that I no longer needed to live with the terror of MS, as a new treatment was available to stop my disease progression. Attempting to explain HSCT to friends and loved ones became my next stumbling block. Most of them did not even understand MS. One friend summed it up when I told him that things were getting worse: “I don’t really know what MS is; but I know it’s bad!” This site is here to show to your friends and family and help them to understand just how important getting this treatment is to your future and if they love you, to theirs. Unless you live with MS it is impossible to understand what a cruel and unforgiving monster it is. HSCT is the sword that can slay the dragon that is MS and give back hope and life!
Once you have grasped the general concept and you wish to ask more questions that are of a scientific or medical nature please go to Facebook and join the forum”HSCT Awareness” which is moderated by many knowledgeable people (many of whom have been treated with HSCT) and my lovely self! ;-). We will do our best to help you navigate the HSCT path and with many veteran’s as members you know we can help!
HSCT is still not available in mainstream national health care in most countries. The UK is the same. While trials are being conducted in several countries (please access this information under “choosing a facility” in the menu), it will be many years before this is a recognized and available procedure in mainstream medicine. In order to gain optimum benefit from HSCT it is imperative that transplantation is undertaken earlier in the disease life cycle than later in the disease evolution, when there is a greater degree of irreversible disability. This means that it is a fight against time for many stricken with MS, who have the added burden of coming up with the money to ensure that they catch this boat before it leaves the harbour!
Finally I too am raising funds for treatment in Russia which is the only facility I have been accepted at, as soon as possible. Equally we are trying to raise funds to treat as many people as possible. If you find the information here useful and informative please consider making a donation to help me get the treatment I need and also help give back the hope of a future to as many other people as we can! I wish you all the very best with your journey to pursue treatment and banish the curse of MS from your life once and for all!